Breathing Freely: Navigating the Journey from Misdiagnosis to Specialized Care for iSGS
• Presented by the Johns Hopkins Department of Otolaryngology–Head and Neck Surgery, the Johns Hopkins School of Medicine, and Hopkins at Home •
For many living with Idiopathic Subglottic Stenosis (iSGS), the simple act of breathing becomes an arduous daily struggle, often complicated by years of misdiagnosis. Join Dr. Alexander Hillel, a leading Johns Hopkins laryngologist and airway surgeon, and Amy Atwell for an essential conversation about recognizing the signs of this rare airway disease and accessing the specialized care necessary for long-term relief.
This expert-led webinar will explore the critical pathway from identifying symptoms—frequently mistaken for asthma or bronchitis and even anxiety—to minimally invasive surgical interventions. Dr. Hillel will discuss the latest clinical breakthroughs, including a new endoscopic procedure with skin-graft and stent that offers lasting results. Through the lens of a firsthand patient journey, we will examine the physical and emotional impact of the disease and the transformative power of a precise diagnosis.
This session is designed for patients, caregivers, and anyone interested in the latest advancements in airway health. Whether you are seeking information for yourself or a loved one, you will gain valuable insights into the innovative treatments helping individuals regain their breath and their quality of life.